Reviews: Becoming an Autism Success Story

On April 1st, two very distinct things occurred. The first is that it has been marked as the official start of Autism Awareness Month. The second is that author, autism activist, and self-advocate Anita Lesko had a book published by Future Horizons come out as a new release. This book, entitled Becoming an Autism Success Story, finally hit the shelves on April 1, 2019. As a fellow blogger for Future Horizons, I had the chance to read this book a week before it released on the market. What I found differed from I expected.

Anita Lesko with a fan during the Nashville Future Horizon’s conference.

Foremost, the book not only talks about Lesko’s upbringing and her background, it also talks about different methods that can help individuals on the autism spectrum. One such example is visualization and neuroplasticity, which is where one can learn to do something by seeing others doing an activity and then visualizing themselves doing that activity. Lesko also talks about hippotherapy, where one with autism works with horses to improve areas such as balance and coordination.

Image result for photos of becoming an autism success story

In another part of the book, Lesko describes growing up living in a poor family and finding alternatives to doing the activities her to otherwise could not afford. One such instance is receiving horse lessons for working at the stables by mucking out stalls. She also talks about struggling with coordination and having trouble socializing with everyone but her mother, Rita. Prior to working with horses, she never really talked to anyone. Beyond her childhood years, Lesko talks about how she broke out into the world of nursing and anesthesiology. In her book, she shares how she learned, which is through visualization to become a successful grad student and nurse.

To boot, she talks about transitioning from having supportive parents for 53 years and living with them prior to dealing with the bereavement of losing them. She also discusses becoming a support group leader and meeting her husband, Abraham, who is also on the spectrum. She talks about how she and Abraham never wanted to part and married at an all-autistic “2015 Autism in Love Conference.”

Finally, she talks about making self-discoveries at 50 after being diagnosed with Asperger’s syndrome in 2010. She spent much of this time doing lots of research on autism. Right in the middle, she stumbles upon the popular documentary The Woman Who Thinks like a Cow, which was about Temple Grandin. She also talks about how she met Temple at a conference in 2013 and how those two have been able to become friends.

In reviews, I highly recommend this book, whether you are a parent struggling to find answers for your child (despite if they are 10 or 21) or are a person with autism who is battling with depression and is ready to give up. Not only does Lesko share helpful tactics, but she also describes that she has intense training in life coaching. To show says she is open to others on the spectrum contacting her in sharing their success stories while talking about using 7 steps to using visualization.

In other areas, I found myself on the edge of tears when she described losing her whole immediate family right around the same time. I especially found this touching as I had just lost my aunt Lois three months ago, who could mentor me and change my life. That was one part that really hit home for me as I read the rest of the book on April 7, 2019, before turning the lights out.

Things I would have liked to have read about was about how long she had known Abraham before they fell in love and got married. I also would have liked to have heard her talk about her wedding in more detail. In other areas, I would like to have heard her talk more about how they selected Anita to speak at the United Nations in 2017. Finally, a little more about how she wrote The Stories I Tell My Friends. Otherwise, this book is worth the read.

References

[Photo] (2019) Becoming an Autism Success Story. Future Horizon’s

Books. Arlington, TX.

Lesko, A. Atwood, A, & Grandin T. (2019). Becoming an Autism

Success Story. Future Horizon’s Books. Arlington, TX.

Odds and Ends to Consider for Passengers on the Spectrum

Despite everything from my blogs related to products and other events through Future Horizon’s,   I have to once again realize the origins of these blogs.  That is to write about topics are of scholarly value while others in practical application.  Here, I would like to once again write about autism and traveling through an airport.   Yes, it has been a while since I have put my peddle to medal and really talk about more things that I feel anyone could benefit from.    Without further delay, here are more things I have considered.

Me in the cockpit during a Saturday tour.

Foremost, about a handful of airports, including Hartsfield-Jackson International airport have opened sensory friendly.  To name a few others, Cork International Airport in Shannon Ireland, Heathrow International Airport, and Myrtle Beach International.  Beyond that, officials from Pittsburg International came to visit Hartsfield with the purpose of designing a third sensory room in the US.   Looking at their website, they stated that they have spoken with the public of how a sensory room should look like.   A few suggestions were

Neutral smell

Soundproof

Calming activities for children

As someone who have spent lots of time with the “Wings for Autism/All” events and the “Taking Flight: Autism Worldport Rehearsal Tours,” I support all of the above, being that autism can affect one’s sensory issues.   That Hartsfield-Jackson being so big, I warmly welcome closing down the smoking lounges and converting them into other sensory rooms.   Right now the option is to go all the way to concourse F, they locate which just inside the international terminal. Otherwise, finding the quietest spot at another concourse at an empty gate, discovering nooks inside each gate, and even walking downstairs with the tunnels and the electric train are.  Even more so, since there are only a handful of sensory friendly rooms in international airports, out of 40,000, other options have to select.

Filtered florescent light at Hartsfield-Jackson sensory
Bubble Machine at Hartsfield Jackson

On another note, families have the option of investing in noise canceling headphones which are wireless.  After doing thorough research of trying out and looking into price options, I found that Sony really has the best quality for families who have loved ones with sensory processing disorders and other factors that trigger their anxiety.  Yes, Sony and Bose offer a more peaceful experience for an autistic, this is a very costly investment.   The average price of good quality noise-canceling headphones comes in at the price of $300-$400. In that case, a family night needs financial aid to help their child. Yes, there are cheaper options out there.  For instance, Sony offers a pair of $50.00 noise-canceling headphones that required being plugged into a phone.  Others only work when paired with a phone or plugged in. Unlike the Sony or Bose, listen to music.  Still, they are thick enough to muffle loud, surprising and overwhelming noises.   That said, if noise cancelling headphones are not an option, one can invest in getting a pair of headsets or old-fashioned foam earplugs.

I for one and a sensory seeker, which means that I enjoy the feeling of the foam when applying the ear plugs in a noisy environment.

Flight attendant

Just as importantly, airport personnel needs to know that a passenger has an invisible disability like autism spectrum disorders.   Just recently, airports in the UK have adopted the Sunflower lanyard program.   This enables autistics to wear special lanyards with Sunflower which tells a worker that the passenger has an invisible disability and may need help.  Why just today, while I was at the Wings for All, event, I received a gift bag.  Inside contained a bracelet with the Delta logo that lights up in two directions. One one end, the light remains steady, whereas the other, the light will flash.  This gave me another idea I think airports like Hartsfield-Jackson will find to be helpful.  Like with the sunflower project, autistics would wear similar bracelets that light up while they are at an airport.   All the while, they would train all airport personnel to in being able to recognize the illuminated bracelets.  Whenever an autistic is about to have a meltdown, their parents and themselves can then switch the bracelet to flashing mode which would notify an airport official they need help.  Believe me, I could think about all of this in one afternoon after seeing the bracelet post at the big event. 

As I bring this to a close, I really hope that the public has time to read this blog and that these words taken seriously and put into action.  Even more so, that families and individuals on the spectrum will feel more comfortable by traveling through an airport. 

References

Dyson, M. (2019). Cork airport rolls out scheme for passengers with hidden disabilities. [Web article]. URL:
https://buyingbusinesstravel.com/news/2030046-cork-airport-rolls-out-scheme-passengers-hidden-disabilities

Sensory Room(2018). [Webpage] Pittsburg Intrrnational Airport. URL http://www.flypittsburgh.com/programs- services/services/sensory-room

Worth-It for You to Learn about the origins of “Hello World with Miyah”


It’s April, meaning that this is Autism Awareness Month to most of the world while others refer to this as Autism Acceptance Month. Since the opportunity is at grabs, I would like to share a little more about myself and how I got started as a blogger.    

First and foremost, I would like to mention that I wear 7 hats in society

I am employed at the Center for Leadership in Disability which is housed in the School of Public Health at Georgia State University . The second hat that I wear is that I am an undergraduate student in my last year with a major in psychology before going onto persue a master’s in public health with a concentration in statistics

The second hat that I wear is that I am an undergraduate student in my last year with a major in psychology before going onto pursue a master’s in public health with a concentration in statistics

I am the entrenuer to the blogging Brand “Hello World with Miyah”

I received a press pass to blog about a Future Horizon’s Autism Conference in November 2018. Temple Grandin and Anita Lesko were two of the speakers

  • I started blogging on youtube in late 2013
  • I expanded my blogs to writing on wordpress in 2016
  • Recently, I began blogging for Future Horizon’s books, which sells products related to autism resources.
    I am a homeowner in the greater Atlanta area which I have been for nearly a decade and recently just got a red-headed roommate named AJ who says “Meow.” homeowner in the greater Atlanta area which I have been for nearly a decade and recently just got a red-headed roommate named AJ who says “Meow.
Me at an autism airport rehearsal tour

I sit on the ADA at Hartsfield Jackson International Airport along with being involved with their monthly Autism Airport Rehearsal Tours. “Taking Flight: Autism Worldport Tours

  • Our team won an award from Delta Airlines

The 7th and final hat that I wear is that I am autistic and was diagnosed at age 11 in 1993 with Pervasive Developmental Delay- Non-Other Specified. Post, diagnosed with Asperger’s Syndrome at age 22 in late 2003, which was renamed as an autism spectrum disorder.  

My best friend Brad Clark and at I at 2008 Candlight Ball, since I don’t have ones for 2007. No we are not dating but we have talked about it.


It all began in 2007 when I could attend a special black-tie affair called CADF: Candlelight Ball, they held annually which raise money for autistic adults to receive services. Back in the day, I was a client for the Emory Autism Center, which had a program for adults. Based upon learning that a close a friend telling me of this exciting opportunity, I was persistent in contacting my behavior specialist. At first, the opportunities were slim pickings as the slots were almost full. Apart from the odds, I could get into the event. Prior, it required me to take etiquette lessons with other clients, which included two friends of mine. In the course of the lessons, the center hired a videographer named Damon Wood. While he recorded the lessons, he looked for clients who will do an interview As he was asking around, my late aunt and I was among those who he inquired. As a result, I said, “Yes.”

My Late Aunt Lois

As he was asking around, my late aunt and I were among those who he inquired. Following, Lois had had Damon and his assistant, Chris over for dinner. Next, I stayed in the dining room with Damon and Chris while Lois left the room. At such a time, I spent the next hour sharing my story in which I shed tears while I shared my desires. Though I wanted something to show those desires, Damon fell in love with some outspoken and straightforward things I came up with.  

When the big night came on March 8, 2007, I fell in love with the event which was something I saw out of a favorite TV show, “The OC,” which was big in the early 2000s. During, they treated my friends and me to a top of the line dinner and a lovely jazz band. Therapists and mentors who had worked with I also greeted me. Most of them approached me and said that my interviews in the video were fantastic. Then the big moment came when they showed the video, A Lifetime of Service, which was about all the things individuals could achieve at the center. Though I was expecting a Barbara Walters’s style interview, it surprised me. Rather, there were snippets of myself practicing dinner etiquette with my peers, cooking, studying and saying outspoken things. One of those things were, “Sometimes neurotypicals can be a pain in the butt, but I have learned to live with them. I moved the audience to laughter and tears. In fact, you can view the video down here. 
https://www.youtube.com/watch?v=nAjywO1VMA4

Six year later, Wood had gotten in touch with me after looking over my archived videos. In consequence of, I agreed to meet him at a frozen yogurt shop in late June of 2013. During this time, we discussed doing a series of vlogs with me. He said that these should really be on you tube. At that date, I was in love with shows like Good Morning America and The Today Show. At the moment, he wanted me to a day in the life of an autistic type vlog. In the meanwhile, I desired to create a vlog that would look more like a news show by autistics for the nerd word, where we would cover everything from NASA to conventions like Dragon Con. All the same, Damon attempted to do a few sessions with me which I looked forward to. Prior to this, I began writing out scripts and constantly thought about old broadcasts in the 50’s ere combined with the first two words in the opening theme from the Partridge Family. In which, these words were, “Hello World.” That being said, those opportunities would not last being that he had a family to take care of and bills to pay. Therefore, I took over project on the 25th of October 2013, the day after my 32nd birthday. Link can be found here: https://www.youtube.com/watch?v=qVr6z2U0eNE =qVr6z2U0eNE

Since that date, something has determined me to build an audience for myself. In the beginning, I relied on a webcam, a Kodak digital camera and iPod Touch. There were no fancy titles or music to speak of. As I researched vlogging, I found free editing apps on my iPod which had music and titles.   

Since that date, I have been determined to build an audience for myself. In the beginning, I relied on a webcam, a kodak digital camera and ipod touch. There were no fancy titles or music to speak of. As I began to research vlogging, I found free editing apps on my ipod which had music and titles.

During this time, I attended talks by Temple Grandin next to reading her books. Among this information was excellent information regarding autistics developing talents and skills which could turn into a portfolio. Being I loved to write, I elected to put my writing skills to use so I too could sell my work. I had elected that unlike my YouTube videos, these would be scholarly and practical application types that would be autism specific. 

I also stumbled upon a well-known vlogger named Casey Neistat who showed the meaning of “Day in the Life” type vlogs. Though I didn’t jump onto that bandwagon at first, I watched plenty of Neistat’s videos and listened to his music repeatedly. In 2018, I could download my first serious editing software along with getting a hold of the few of the same songs found in his videos. In January, my first works got published,

The first book I wrote about for Future Horizons
Temple and I at Matthew Reardon Autism Conference

At the same point, I elected to expand my written blogs by electing to find events where I could get a press pass and write blogs. One thing I wanted to blog about were events related to talks given by Temple Grandin. Luckily, my first opportunity was around the corner as a friend had invited me to an event in the Chicago area. I soon acted upon this opportunity by putting myself out there and making myself known. During the interval, a representative of Future Horizon informed me’s blogged about their books at conferences. Ecstatic as I was, I signed up and wrote my first blogs in mid-2018. These titles  includedhttps://helloworld240.wordpress.com/2018/07/23/reviews-its-just-a-what-little-sensory-issues-with-big-reactions/https://helloworld240.wordpress.com/2018/07/24/my-reviews-the-stories-i-tell-my-friends/https://helloworld240.wordpress.com/2018/07/25/reviews-on-manners-matters-temple-talks-to-kids-series/https://helloworld240.wordpress.com/2018/08/14/reviews-video-modeling-visual-based-strategies-demonstrated-to-help-people-on-the-autism-spectrum/https://helloworld240.wordpress.com/2019/03/28/review-dogs-and-autism/

and more…

Future Horizon’s trademark for bloggers

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Having said that, I hope you have a chance to check out my youtube channel as well as my written information.https://www.youtube.com/channel/UCvee5Vz_h9bsFTwXbU3_GdA?view_as=subscriber

Note that if you like what I am doing, please hit those subscribe buttons and give me thumbs up. Also share this with anyone in the autism community. Happy Autism Awareness Month and Autism Acceptance Month

Until next time, I’m Miyah Ryan

My Special Brother Bo

Currently, I just read the newest release of the children’s book “My Special Brother Bo,” which was written by Britt Collins with illustrations by Brittany Lynn Bone-Roth. While Collins has a background in occupational therapy post receiving her education from Colorado State University, Bone-Roth has a background in art. The pair both have their share of experience working with very young autistic children in addition to other types of special needs. A short time ago, they paired up to create and publish this newest book that will be available through Future Horizons. It can be picked up at various autism conferences or online.

The story is told from the the point of view of a seven-year-old girl named Lucy who is the older sibling her pre-school-aged brother, Bo. While Lucy appears to have a normal childhood, she explains that her brother has special needs. Though Lucy does not directly mention that he is autistic, she implies that this is the case. One such instance is that Bo was enrolled in an early intervention where he was taught to speak and eat in a special gym. Lucy describes some of her frustrations of living with an autistic brother and not being able to do specific activities with her brother because he is scared of them, such riding on the swings. She also discusses feeling ashamed of inviting her friends over in the fear that Bo might not be accepted. Lucy also goes on to talk about how she loves her brother and feels proud to be his big sister, and to help him learn new things and succeed.

As a reader, I really felt that this book should be in elementary and daycare settings so that children can learn more about autism spectrum disorders, autism awareness, and autism acceptance in mainstream settings. At the same time, there should be more than one book and preferably describing what autism is. Not only that, there should be books similar to the one written above written by real children who have siblings on the spectrum with the help of their parents. That way, children will better be able to understand what it’s like to live with an autistic or neurodiverse sibling.

References

Bone- Roth, B.L. (Illustrator). (2019). My Special Brother Bo. [Illustration]. My Special Brother B. Arlington, TX: Future Horizon’s Books.

Collin, B. E. (2019). My Special Brother Bo.   Arlington, TX: Future Horizon’s Books.

My Reviews on the Nashville Autism Conference

Barry Nashville Airport

Three weeks ago, I had the chance to attend the Future Horizon’s Autism Conference in Nashville, TN or music city. This one-day conference began early on the morning on the 30th of November and ended in the early evening. Attendees ranged from educators to professions and family members to adults on the spectrum. Speakers included Dr. Temple Grandin, Anita Lesko and Jim Ball. Prior to the first presentation, attendees checked in while others gathered around the table while others got their books signed by Dr. Grandin herself. All the while you could grab yourself a cup of coffee and a small continental breakfast.

Directly following her book signing and morning photos, Temple was the first speaker of the day. During her talk, she touched on everything from growing up as an autistic to sharing her main of autism becoming the main focus in a person’s life. Following her presentation, Grandin held a second book signing where fans could also get their pictures taken with her while asking her more questions related to autism. In my case, I had Temple sign my copy of “The Stories I Tell My Friends” in which you can find on wordpress.

Next up was Anita Lesko who made marched around the ballroom to the theme song from Rocky, “You’re Gonna Fly Now” while donned in white LED Christmas lights. Throughout her march, Lesko carried a basket with little cards that held her autograph and a quote by Bon Jovi. For the time being, Lesko also talked about growing up feeling that she was awkward and quirky while waiting until the age of 50 to be diagnosed with Asperger’s Syndrome. Prior to that diagnosis, Lesko explained what her life was like growing up while describing each job in detail. Say, working for a stable where individuals could jump horses. In exchange, she learned to ride and jump as well. Lesko also says that she learned how to braid horse manes which made a lot of money. Later, Anita also posed for photos and signed books including my book.

At the same time as Lesko’s talk, Grandin spent time talking with fans about everything on from tips related to employment, to teaching social skills to individuals on the spectrum.

Finally, Dr Jim Ball, a BCBA specialist spoke on everything related to the true definition of behavior to the way an autistic sees the world. While sharing each topic, he often placed lots of emphasis on Temple Grandin’s models next to sharing humorous stories of clients who he worked with. He also explained why so many autistic adults face unemployment and under-employment. Two of those reasons are because they can’t take criticism and because they are too honest for their own good.

In addition, the conference had resources for the greater Tennesee area from medical needs to special needs attorneys. Finally, there was a vendor that was run by a 10-year-old boy on the spectrum and his mother where they sold fidgets. for people who were on the spectrum. At the Future Horizon’s resource table, there were mountains of information from information related to meltdowns to medical advice. Other items were fidgets and magnets that read “Autism Awareness.” Still, the table sold just about every book by Temple Grandin from her most popular to her most current such as “Calling All Minds.”

Overall, the conference was able to provide its attendees with lots of very helpful and inspiring ideas for parents, educators, professionals, and those who are on the spectrum. For example, parents can take Temple’s models and examples and apply them to the lives of their children. Moreover, all the speakers were very approachable and friendly. For example, while signing books, Temple was not shy from recommending certain books for each scenario. By the same token, not one attendee seemed to complain or wear a frown. Rather, they were impressed with the information that was widely available. Likewise, I was bedazzled by each talk. In Anita’s talk, for instance, I admired the way she introduced herself for her talk with the music, the Christmas lights, and Rocky theme song. For this reason, I have a friend who is the spectrum who likes to do eccentric things when he does his presentations. Finally, I would also agree that each talk provided a good deal of meat along with feeling they were able to meet audience members who had come from very different backgrounds from one another. Say, one set of parents who brought there autistic son who does not use formal language but learned to speaks through writing and typing.



On the other hand, one thing that each conference seems to be currently missing is a sensory friendly room where autistics could take a break from the all the excitement. Being that FH provides lots of books that hold evidence-based studies related to sensory, I feel that it would be appropriate to have such a room that is readily available. Otherwise, the great conference that I found to be very successful.

Visiting Nashville TN for the Future Horizon’s Autism Conference

Temple and I at a FH conference in 2014 held in Atlanta

On Thursday, November the 29th, I will be boarding a flight that is bound for Nashville, Tennesee.  During my stay,  I will spend much of the afternoon and evening studying, dining and sleeping in my hotel.  The following morning, I will grab myself a large breakfast before hopping on the hotel’s shuttle which will drop me off at the Nashville Airport Marriott.  It is at this site that Future horizons will hold it’s autism conference where I will blog about the event and the speakers.

 

I am particularly looking forward to attending this event is that two out of three speakers are women next to being on the spectrum like myself.   What is more is that one of them happens to be Temple Grandin, who I have been acquainted with for quite some time. One of the main reasons is because her latest talks included information about how an adult with autism can learn to drive.  Being that I am 37 and have never learned, I feel it’s never too late.  So I am hoping to inquire with her second reason I catch up with Temple is that I have a friend who is currently unemployed and is facing some levels of discouragement at the moment.   I would like to put her on the phone with him because she is very encouraging and I believing she would give him some helpful advice.   Say, getting a work portfolio work samples that my friend can present when seeking a new job. All the while hoping to provide tips when he gets discouraged.   Ultimately, Temple and I are both very quirky women on the spectrum who believe in getting things done.   I look forward to seeing another go-getter like myself who believes in others on the spectrum.  

Not only that, I look forward to meeting Anita Lesko, who the second woman on the spectrum who will be presenting.   At the present, Lesko and I have not only had the chance to hear her speak live in an interview on World Autism Awareness Day.  I also had a chance to read her book “The Stories I Tell My Friends,” which is exclusively about Temple herself.  I am also inspired by her own amazing adventures including her all autistic wedding and her adventures flying on a fighter jet next to sharing some of the same struggles that I face daily.   As those of you who are my followers recall,  I read and reviewed that book.   So am I excited to finally be able to meet Anita.   

Following both of their talks, I look to get my copy of “The Stories I Tell My Friends” and hopefully at the same time.  Apart from getting the book signed, I hope to pose in a photo together with Temple and Anita.  Particularly as a way of saying “Thank you” for allowing me to read and review their book.

 

 

At long last,  I will have the chance to meet Dr. Jim Ball, who is specialized in ABA.    One of the reasons to listen to him is because of the some of the work that I am currently becoming more familiar with all this.   As I don’t know much about Applied Behavior Analysis, one would argue that it would sensible to get my feet wet.  This is especially since so many adults with autism are protesting the use of ABA versus other therapies such as floor time. 

While I impassioned about the conference,  there are two more days.  During that time, I have to remind myself that things need to be done now and then.  Between work, finals to study for and a flight to catch, there is a lot to be done.  

At this time,  you may wish to look at the link which contains information on the conference. 

https://www.fhautism.com/about-our-autism-conferences/autism-conference-with-temple-grandin-in-nashville-tn-november-30-2018/